Saturday, November 22, 2014

GMO OMG


I’m no Siskel or Ebert but I recently saw a film that I’d have to give “two-thumbs up” to. GMO OMG by Jeremy Seifert was released in July 2014 and features one man’s search for answers about genetically modified organisms (GMOs) and how they affect our children, the health of our planet, and our freedom of choice as consumers.

It struck me that, while perhaps not directly related to Parkinson’s, there may be some common chords between the issues of PD and GMO. For people with Parkinson’s, a chronic neurological disease of mostly unclear origin, an increasing number of studies and papers have been reflecting on toxic chemicals used in our environment as possibly giving rise to PD and other neurological conditions.

There is speculation that everything from exposure to chemicals such as Roundup, and the use of "super corn" seeds that completely wipe out all their enemies, will have serious implications for the environment. Further, there are no long term research results to ensure the safety of the people and the earth concerning such products.

Now, I don't pretend to be a scientist (does a social scientist still count?!?) so, in Canada, I turned to David Suzucki Foundation* to help further my understanding. GMO's — or genetically modified organisms — refer to the plants or animals created through merging DNA from different species. The first GMO crop (the Flavr Savr tomato) was approved by the FDA in 1994 and, since then, a variety of corn, soya, sugar beets and canola have become common local crops in Canada. Others, such as cottonseed oil, papaya, squash and milk products are imported from the USA into Canada. In a mere 20 years, GMO ingredients have made their way into most of the processed foods available on Canadian grocery shelves. Apples, potatoes and wheat are all in the lineup for approval.

GMO crops, when first introduced, were touted as the answer to world hunger. The argument was that by developing pesticide and herbicide resistant crops, farmer's would be able to increase their yields and decrease their costs. This has not proven to be the case. Instead, bugs and weeds have become increasingly resistant to the widespread applications of these chemicals, leading to increased use of both. More spraying means more costs for the farmers, more damage to the environment and more health concerns.

It also means more product purchased from the seed producer. The companies that develop and patent GMO seeds are the same companies that develop and patent the pesticides and herbicides to which the unique seeds are resistant. Monsanto is the largest seed company in the world and owns about 86% of GMO seeds sown globally. It is also the parent of Roundup.

The safety of GMO foods is unproven and a growing body of research connects these foods with health concerns and environmental damage. The American Academy of Environmental Medicine suggests there is more than a casual association between GM foods and adverse health effects and that GM foods pose a serious health risk in the areas of toxicology, allergy and immune function, reproductive health, and metabolic, physiologic and genetic health.**

In light of these growing concerns, most developed nations have at the very least, adopted policies requiring mandatory labelling of GMO foods and some have issued bans on GMO food production and imports. In Canada we have neither. As consumers, we are largely unaware that the foods we choose contains GMO ingredients. It is this basic right to choice that is behind the growing movement to have GMO foods labeled. While environmental and food advocates lobby for labeling, other groups, like The Non-GMO Project, have created voluntary non-GMO certification to facilitate consumer information. 

GMO OMG is an informative and alarming call to action for those concerned with our health and environment. It is produced in a very accessible format and the story unfolds in an engaging manner. Good soundtrack too!  It's not likely to show up in your local cinema complex but try your local library or order on-line.





*  (Understanding GMOs) www.david suzucki.org. 

** Truth11.com





Tuesday, November 4, 2014

I'm not angry anymore

I'm not angry anymore. And therein lies my problem. 

You see, for years I've been espousing the importance of being positive, confronting Parkinson's and the challenges it has brought my way. Putting my best foot forward, remaining optimistic, retaining a sense of humour. Most health care providers, literature, on- line resources and fellow Parkies will tell you the same thing.If you've been a regular or even occasional reader of this blog before you will likely recall a post or two that did this very same thing. I may not be a pollyanna but I have come to appreciate the benefits of a sightly more positive approach.Why even last month, with the help of a few fellow Parkies, I detailed the "good things" PD has brought into our lives! 

So, have I suddenly turned bitter and disenchanted? Abandoned this emphasis on positivity? Not at all. I've just been thinking of late that I need to get a little more anger in my life...to stoke up the proverbial "fires of discontent"...motivate me to be more active and engaged.

Well, perhaps not that angry but you get the idea I hope. 

Not to do so will result in an increasingly insular life and this, for me, is not a good thing!

I must confess that, as much as I still trumpet a positive approach to living with PD, I have many moments when I am extremely challenged to be positive. When I'm tired or overly stressed.When I struggle to do things that used to be routine. When I react inappropriately to something my kids have done or said. When I'm having a particularly bad day physically. On such occasions, I need to endeavour to do better. 

And, on such occasions I will try. 

But, for the rest of the time, I'm going to be mad as hell and I'm not going to take it anymore!

Friday, October 31, 2014

one good thing

A few months ago, I joined an on-line support group for people with Parkinson's. There's about 5,000 members from around the world but as the language is English, I'd say the majority of members are from the UK and North America. Each day, there are at least a few dozen posts ranging from "good morning" wishes, to ruminations on pain and symptoms, queries about medications, and discussion starters. There always seems to be someone contributing the joke-of-the-day, the craft-of-the-day or the inspirational-poster-of-the-day. There's the ever-present optimist and the omni-present pessimist. The faces aren't always the same as most come and go as time and interest permits. I'm like this as well. I appreciate the administrators of this site for the work they do to keep it moving along on a steady course despite none of us with PD are what one might call particularly steady!

At any rate, recently another one of the members from Canada posted a comment that caught my eye. He asked for people to share "one positive thing that came from having PD in your life". This struck me as a different take on living with PD and one that presented a chance for reflection. But it also struck me that the results of such reflection had benefits not only to those with PD but to those in the much broader world who don't have PD (or other serious health concerns at present). It gives such persons a window in the world in which those of us with PD, and our families around us, live.

I am sensitive to the fact that some people who have contributed to the on-line discussion in the support group may not wish to share their comments outside that group. In an effort to address this,and still reap the benefits I've described above, here's a sampling of the responses received (names removed and content edited to protect anonymity) to give you a sense of what people had to say. I have endeavoured to leave nothing in the submissions that could identify individuals outside the group. I thank those who contributed and hope that you may find it interesting.

like this label?


UK - it gave me more time to spend with my family....I sure do appreciate the time I have with my wife and 2 boys.

SK - I would have said the same thing as UK but as the kids have aged and had lives more independent, that's changed. i'd probably say though that a general "slowing down" of what was once a hectic paced life is probably a good thing. 

BW - I'm learning to use my non dominant hand more and have surprised myself in how well I can do things with it.

OW - Positive breeds positive.

DD - BW brings up a great point. In a way, he's talking about evolving. What once worked doesn't anymore. We're adapting. That's a great thing. We're some of the strongest people I know.  We continue to grow, evolve, and adapt. That's an awful lot to be proud of!

KS - my spouse and I both realize that every moment is precious.

CK - I have more free time


SF - Patience!


IK - PD took my ego and put it in the backseat. Humility, a sense of calm and a deeper spiritual path. I am without armor now and my heart is open.

CM - I have found that there are many people in my life who willingly offer to drive me to doctors, the store, etc. I have discovered that my friends love,me and will go the "extra" for me. It was very humbling and gratifying to learn that.

ET - I've learned that I am truly a positive person. If I wasn't, I would not be able to handle this.

TC - PD helped me learn to relax and put myself first, the "to-do list" second... I've also (re-)learned that complete strangers will offer help as needed.


KL - PD gave me intense spirituality

EA - PD has made me a better person,I found strength that I never knew I had and it taught me lessons in humility and how to be a warrior for hope and strength of character.

KP - I have become very creative. I need to have some creative project going all the time.

NR - Friends!!

EK - It's changed my life for the good in many ways. I'm closer to my friends and family. I've found my soulmate, discovered many new interests and had the time to use my creativity. Most of all it's made me realise how precious life is and make the most of every day. 

EW - All the wonderful people I never would have met.

DC -I've taken a step back to look at myself and made some very positive changes. I returned to activities I enjoyed as a younger person and added more. Life is good now.

TW - compassion. 

UL - the silver lining is the folks who you meet in support groups, web groups, etc.

BH -  I am able to get social security benefits.

BS -  Made me realize and appreciate how beneficial slowing down and spending time together is.

NS - Living life to the fullest . Really opening my eyes and appreciating everything.

FI - Living in the now.

BF - the one thing that i do like is some of the vivid dreams that i have. they are almost real and i feel so much peace in them i dont want to wake up

BL - As a nurse, I notice my patients take more time to "smell the roses" appreciate the little things in life that make it full 

EL - PD slowed me down enough to discover who I am, what I truly desire, and brought me closer to God.

HH - That is positive thinking. Like you I now spend more time with my husband. Move a little slower than before not able to do some of the things I use to do however I enjoy our time together. Some good days and some not so good days.

NR - PD has made me appreciate every day more fully. I am close to God now, and I pray more.

MS -I would love to be more upbeat, but I've yet to see anything positive come out of this.

EJ- Having PD is learning to be patient & to take each day one day at a time. Set goals and try to do a little project at a time (and its okay to relax in between!).



Wednesday, October 1, 2014

oozing caramel, melting chocolate


                  

               Shed Pounds or Your Money Back!!



How many times have you looked in the mirror and thought "I wish I could just lose a few pounds around my waist...a few inches off my thighs...that double chin I seem to be developing". Do you wish that there was an easy way you could just make it all disappear? Well, I am here to tell you today that there most certainly is an easy way! Thousands of people just like you have already had their wish come true and you can too! For a limited time only, you can get the results you want without all the muss and fuss of dieting or calorie counting like so many other programs require. Just one, simple step and you're on your way to that waist you so desire...those slender thighs...that chiseled chin! Interested? 
Ready to sign-up?? It's really very simple - get PD! Yes, whether it's through exposure to toxic chemicals in the environment, or some bad chromosome passed down through your family genes, getting PD will set you free from all these weight-loss woes! But wait! That's not all! If you act now, you will also receive at no additional cost to you, stiffness, rigidity, tremors, cramping, sleep and cognition problems - to name but a few.

But then (and by then I mean at present, this year, NOW) my medications have been working. I rarely have long periods of dyskInetic behaviour. And I have more than a few extra pounds with me. I've had to be more conscious of what I am eating and try to be more physically active which, in the long run, are probably good practices. Practises that I need to practise a bit more!For now, I feel bloated, heavy and out of shape. This, when my PD drugs are working. Enough to make one long for the good old days when my PD drugs weren't working!


As you can probably tell, I'm writing this somewhat tongue-in cheek and I'm not totally sold on the idea that Parkinson's Disease is a good weight loss program. Though I have, at times, been the unexpected beneficiary of such providence. When I was at my physical worst - when dyskinesia ruled my body for most of the day with my flaying arms and legs in constant motion - I burned off so many calories! I could eat whatever and whenever I wanted! Chocolate bars, chips, ice cream. Midnight snacks. More chocolate bars. Just a few minutes of "shakin-all-over" and it was gone! 

Oozing caramel, melting chocolate.

What nice memories...




Wednesday, September 17, 2014

On the Catwalk

"I'm too sexy for my shirt" declared Right Said Fred.



I'm a model. 
You know what I mean?
and I do my little turn 
on the catwalk.

But I ply my craft far from the runways of Paris, Milan or New York. 

My steps are less bold, more gingerly taken.

Cocky ambivalence is not how one might describe my demeanor though ambivalent, apathetic, angry might all come to mind with this facial “mask” I wear.

Yes, I’m a model. But not a model in the high powered, celebrated and opulent fashion industry . No, I’m a model in the highly underrated, sometimes banal, not-for-profit parenthood industry. I’m a Dad to my three kids. A parent for some 20+ years now. Not such a unique job but an important one in our community.

To a greater or less extent, and for better or worse, our children look to us as a model throughout their lives. As my Parkinson’s Disease has progressed, I find my behaviours, my thoughts and my actions are increasingly thrust under the microscope of self–scrutiny. 

I have often thought about how my children see me as a “stay-at-home” father and how that contrasts with my previous employment as a teacher and social service administrator. How has this shaped their model of what the working world looks like? Has this in some way diminished my role and/or contributions?

When I am feeling tired or weakened (which, unfortunately is all too often these days) I am challenged to behave or speak in ways that one would consider to be appropriate parental manner - with interest, respect, concern, and compassion. It can be a real struggle. Are my children aware of this? Do they interpret my words and actions through a PD “filter” or simply find ways to cope and persevere through such times? Or do I fall into the trap of using this as an excuse for such behaviour?

As my ability to carry out daily activities becomes more limited, and constraints are imposed on more vigorous family activities such as entertainment and leisure pursuits, do they see me as not contributing to healthy family life? Can they sense the angst it creates to not be able to do such things that once meant so much to me?

On the other hand, having a parent that is disabled presents them with a wonderful opportunity. Disability, illness, suffering, perseverance - as well as gratitude, commitment, and love - these are all very much a part of this thing we call "life". What better way to model these characteristics than to live with them each day?

I guess I am a model. And guess I’ll do my little turn on the catwalk. 

Thursday, August 14, 2014

Swimming


I haven't posted anything to this blog in almost a year for a variety of reasons. However, today's news that comedian and actor Robin Williams had been dealing with depression and Parkinson's brought me back to this piece. Ironically, the last time I worked on this draft was one year ago. I had abandoned it as not being satisfactory. Now though, perhaps to help move forward, I've decided to post it as i wrote it then.The water is a little deeper now and a little more clouded but hopefully I'll be able to "towel-off" and get back to it.


All the literature on dealing with disease emphasizes the importance of a positive attitude in coping with your condition.  Read published memoirs or speak to most "seasoned" veterans of PD, and you'll no doubt hear a testimony to staying positive. 

To date, this hasn't been a problem for me. Fortunately, for the most part, I have been able to keep my head above water despite the rising current of physical challenges, adjusting treatments and the general demands of daily activities. I have tried to keep my PD in perspective - my illness shouldn't define me. And it hasn't. I have tried to live more for the moment and to appreciate that there are many others who face significantly greater challenges, with far less support and/or resources, than I.

And all of this is still true. I still try to keep this perspective. Yet, of late, I must admit I've been flailing. 

Perhaps it's because for the first time I'm feeling "old". My travels in Europe made me acutely aware of the physical limitations I face. I feel the weight of lugging a pump for the enteral delivery of my medication. My children are becoming increasingly independent and, since leaving teaching, I have been unable to find my niche in the community. I want to be able to carve out a role for myself - to feel that I am making a contribution to my community - to have more of a sense of purpose to my day.

Yet more and more, I'm feeling exceptionally tired and challenged by the activities of daily living. I'm struggling with my roles; with a discouraging sense of self. My motivation to accomplish things all too often seems to be waning. I want to address these personal issues yet, the more that I reflect on this 'self', the deeper I wade into an ego-centric whirlpool.

So, I guess I'm in pretty deep.  

And despite my aquatic prowess, gained from many summers in Georgian Bay, I'm not sure I know how to get out of this. 

I am, however, not without resources. I have a good health care team, that includes a Psychiatrist with whom I am regularly consulting. I have the support of all my family and a network of friends that are extremely important. And I still have the desire to see things improve. I am reminded of lines in Loundon Wainwright III Swimming Song:  This summer I went swimming. This summer I might have drowned. But I held my breath and I kicked my feet. And I moved my arms around. I moved my arms around. 

Hold my breath. Kick my feet. Move my arms around.


Sunday, November 17, 2013

You've got to suffer if you want to sing the blues

Over ten years ago, I met a man just a few years older than me, living north of the city and also struggling with Parkinson's Disease. Besides PD, we didn't have a lot in common - Nelson is a former championship weight lifter and an extreme mountain biker. He is also a blues harp player and while I can't play an instrument, I share his passion for music.  While distance restricts our get togethers, over the years we have managed to keep in touch, share updates, and lighten each others load from time to time. We even manage to get in a few hotly-contested rounds of golf as weather and health permits! This past year, as I tried to reassert somewhat dormant writing skills through this blog, my friend has taken to writing, and subsequently publishing, a book that documents his struggles against "the darkness" of PD. In its 100+ pages, Nelson recounts the challenges he has faced, the losses he has suffered and the victories he has achieved. Late last month, I went to his book launch and was pleased to see the reception he received and the pride he has in his work. Here is an excerpt from his book Shaking Hands (Titan Press, 2013).



For centuries people have had to deal with the justification for going to war. Some of the premises that man has accepted as validating a decision to enter conflict have been as follows: the presence of an evil force or entity; the threat or act of someone or something denying another his freedom or health and well-being; a threat to another's loved ones; and finally the threat of inflicting physical, mental or emotional harm.

These are the conditions on which we who are confronted by The Darkness exist. Some people passively accept things as they are and continue on as best they can and resign themselves to the outcomes of their situation. I have never been able to accept domination or defeat without kicking, biting and clawing my way out from under the shroud of darkness that can envelop us.

The preconditions for war that we have lived by throughout eternity all exist for those of us attacked by this disease.

Parkinson's is a truly evil entity/force as it ravages your body and slows and dulls your mind. Our freedom, health and well-being are all subjected to takeover by whatever condition it leaves you in. It threatens the bonds that unite loved ones by making you withdraw and abstain from contact with those who care for you, thereby inflicting pain on them.

Finally, physical, mental and emotional degradation are The Darkness's main outcomes, once it infests your body and your mind. So you see we are truly at war within ourselves, from moment to moment, as we try to outlast the onslaught of evil.

We who suffer from this battle have to realize a very important premise:  there can be no ultimate victory against evil at the moment. Nothing short of a revolutionary turn in focus around the world toward disease will give us hope. Ponder this: how many diseases have been cured or mostly controlled in the last hundred years? Even better, the last twenty-five years? The reality is that in the last century, we have discovered and produced a vaccine for polio, virtually eliminating this threat, as well as smallpox and diphtheria and nothing else.

We evolve physically and mentally over the generations, so why do we not evolve medically? I believe the answer is simple: the pharamaceutical machine cannot abide by cures for diseases being the focus, as this is basically a one-run game, and then the disease is no more and the pharma giants cease to profit.

I don't believe I am paranoid or delusional thinking that pharmaceutical companies have it in their best interests to be able to produce ongoing, profit-making treatments and not cures. much like the oil cartel, they are vested in ongoing profit and nothing short of a global inversion will change that or keep them from obstructing the search for cures.

Michael J. Fox had the right idea when he started his foundation, aiming for a cure. But even his personally vested good intentions cannot overcome the power of the giants who will not permit a real solution to exist. So I respond to those who might question my premise of 'waging war' with The Darkness.

The Darkness is much more than an individual evil. It is the power of greed and control which, on the big scale, challenges us to adapt, worldly, a new mindset, which in time can overcome the profit objective and seek cures for what ails us. Thus, daily, I wage my own personal war, knowing ultimately I can't win, but resolved to milk each moment for positives to hold back the evil cloud.

Excerpt and cover image reprinted with permission of the author.

If you are interested in ordering a copy of Nelson Sleno's book Shaking Hands, please visit his website at www.shakinghands.ca